July 2023

Nottingham University Hospitals NHS Trust was selected for getting up-to-date with their outstanding follow-ups

Joanne Llewellyn (Senior Research Nurse), Dr. Nagla Konbor (Principal Investigator), Catherine Mateo (Senior Research Nurse) and Joanne and Catherine with Linda Duamwan (Data Clerk)

A message from Nottingham:

BADBIR is a success at our site because of our valuable teamwork! Our teamwork is truly the confirmation of the dream work as our follow-ups from hundreds is now down to 0. It has been our team's continuous effort in reaching out to our dermatology team, patients and study team regularly topped with dedication that has made the difference. We have made sure to utilise whatever free time we got to complete follow-ups. Initially seeing that load of follow ups was overwhelming but the consistent hard work had paid off in the end and we are over the moon. We are proud of this success.

Catherine Mateo, Senior Research Nurse

June 2023

Newcastle Upon Tyne Hospitals NHS Foundation Trust was selected for their successful recruitment and long term follow-up data collection.

Professor Nick Reynolds (Honorary Consultant Dermatologist and PI to BADBIR), Dr Philip Hampton (consultant dermatologist), Jade Johnson (clinical nurse specialist), Dr Sophie Weatherhead (Consultant Dermatologist), Sarah (clinical nurse specialist)

Patrick Taylor (Research Data Manager), Wendlyn Bell (Clinical Trials Associate), Cherryl Lucero (Clinical Trials Associate)

A message from Newcastle Upon Tyne:

Our team's success is due to the research team being fully integrated within the psoriasis biologic outpatient service, which gives our patients the opportunity to be actively involved in research.

Our services include a weekly biologic nurse specialist clinic where BADBIR follow-up visits can be completed, and a multidisciplinary consultant-led clinic where all patients are reviewed by the MDT at the end of the clinic. This supports us to identify potentially eligible new patients who we can then approach at their next clinic appointment.

Over time we have built positive relationships with our participants, and they view research follow-ups as part of their clinic appointment and care. The feedback they give says they feel good helping in research, and this for us is extremely rewarding.

Wendlyn Bell, Clinical Trial Associate

May 2023

Royal Free London NHS Trust (Barnet Hospital) was chosen for keeping the register up-to-date.

Jenny Carolan, Faheema Bassa, Ikenna Ohanenye and Sophia Watts

A message from Barnet Hospital:

The whole team at Barnet and Chase Hospital have worked hard keeping the register up-to-date. We would like to say a special thank you to Ikenna who has completed a total of 111 follow-ups since starting work on BADBIR in February this year!

Most studies on psoriasis are usually short-termed, which conspicuously misses out on critical time points on this life-long condition. Our team of consultants and researchers are keen to understand the changes on life-long dermatology conditions, such as psoriasis, as influenced by various treatments. So, the key behind BADBIR's success in our team is deeply rooted on the alignment of our research interest with the primary aim of creating BADBIR.

Ikenna C Ohanenye, Clinical Research Practitioner

April 2023

Grampian was chosen for their completion of follow-up data.

Shirley McDonald (Research Nurse)

A message from Grampian:

Thank you so much for selecting Aberdeen as the BADBIR site of the month, to have been recognized for the dedication and hard work that's has gone in to getting the database up to date, its overwhelming. I took over the BADBIR site back in August 2022; at that time there was a lot of outstanding data to be collected for the 157 participants that we have in Aberdeen. It's been enjoyable updating the register and seeing the database go from a variety of colours to its current state of green and up to date and I hope for it to continue in the future.

Shirley McDonald, Research Nurse

March 2023

Bradford was chosen for getting back up-to-date with their follow-ups.

Jennifer Ott, Faatimah Patel, Rifat Bi, Carol Denniss

A message from Bradford:

I think COVID and staffing had a major impact overall on this study and we had to take a step back for some time.

When Sr Johnson (retired) and latterly myself became the Principal Investigator we thought we must do something as this valuable project has been ongoing in Bradford since 2008. We all felt a little overwhelmed when we realised there were so many follow ups to do. We arranged some training and refresher sessions for all the staff so we could have a strategy of how to go about this. The help and support we received from the BADBIR staff ensured that we were supported enough to work as a team collectively to get the follow ups more manageable. So I guess this is the main reason for why we got the follow-ups done.

Jennifer Ott, Research Nurse

February 2023

Aneurin Bevan Health Board was selected for their continued efforts for keeping their patient follow-ups up to date.

Rina Mardania (Clinical Research Officer), Clare Westacott (Research Nurse)

A message from Aneurin Bevan:

I feel, the reason BADBIR has been a success at ABUHB is due to open communication and mutual trust throughout our team. This is key to ensure we have a shared vision and are working towards the same goal.

We have created and maintained a collaborative relationship with all members of our dermatology team and this has been instrumental in making sure that all data is clearly documeted at each patient follow up. This ensures that every follow-up conducted is completed accurately, and in a timely manner.

Keeping a BADBIR follow-up tracker, checklist and setting up regular study meetings, has been key to promoting the smooth running of the study.

Rina Mardania, Clinical Research Officer

January 2023

Norfolk and Norwich University Hospital was selected for their continued hard work on following up BADBIR participants.

Prof Nick Levell, Dr Priya Patel, Dr Aga Latin and Research Nurse Catherine Wright

A message from Norwich:

In Norwich we are fortunate in having a cohesive team of doctors and nurses who support clinical research and all help with recruitment. Dr Aga Lapin and before her Priya Patel have worked hard with Catherine Wright, dermatology research nurse, in identifying missing data over the last year or so, to get the records well up to date.

The centre of the month award is a real morale boost for our whole team. Thank you.

Prof Nick Levell, Consultant Dermatologist

December 2022

Portsmouth Hospitals University NHS Trust was selected for their continued hard work on following up BADBIR participants.

Emily Rolfe (Clinical Trials Assistant), Dr Eleanor Clarke (Dermatology Fellow), Dr Alexa Shipman (Dermatology Consultant)

A message from Portsmouth:

We feel that BADBIR works well here at Portsmouth as it is embedded into the clinical service. With potential new patients and follow-ups highlighted on clinic lists to our clinical colleagues and our psoriasis nurses, who see many of the patients. All of whom recruit patients.

On a weekly basis we look at upcoming patients and review the follow ups and queries on the database so as to keep the data as up to date as possible. We have dedicated time from a clinical trials assistant purely for BADBIR data collection, a research fellow to assist and some research nurse time.

Jonathan Winter, Specialist Research Nurse

November 2022

University Hospitals of North Midlands have been chosen as centre of the month for their hard work in clearing the backlog of outstanding follow-ups.

Kelly Smith, Mia Marsden, Nenette Abano and Simone Locker

A message from North Midlands:

Helpful hints and tips:

• Team work
• Communication
• Training
• Accuracy
• Reviewing positive outcomes

As newcomers to the research department Simone and I accepted the challenge to deliver BADBIR here at the UHNM. We feel passionate about delivering an accurate account of the patient outcomes and ensuring that the suitable patients are successfully protected and cared for on their bespoke pathway.

Having a good team is essential; support is always there for us in the background whenever we require it from Mia and Nenette. Methodical, reporting and good GCP is at the forefront of their input into the BADBIR study.

Successful delivery of the study would not be possible without clear and open communication not only between patients but the whole team. Good communication between the sponsor/BADBIR has enabled us to deliver this protocol well.

Kelly Smith, Research Nursing Assistant

October 2022

NHS Ayrshire & Arran was selected for their continued hard work on following up BADBIR participants

Alison Love (Senior Nurse Practitioner), Julie Alexander (Nurse practitioner), Yvonne Murray (Deputy Charge Nurse), Marie McLeod (Nursing Assistant), and Alex Waters (Consultant and Principal Investigator)

A message from Ayrshire:

Our team understands the importance of the BADBIR project, and we have strived to regularly update the database with accurate and complete information. This was particularly challenging with reduced staffing during the earlier part of the Covid pandemic, but that situation has thankfully improved. We have well-run nurse-led biologic monitoring clinics at which the necessary information is collected in a timely manner. Having clear and concise documentation is key and greatly facilitates the input of data. We are grateful to be selected as BADBIR centre of the month, and we appreciate the recognition of our work.

Alex Waters, Consultant and Principal Investigator

September 2022

Liverpool University Hospitals NHS Foundation Trust (Aintree) was selected as they have worked hard to clear their backlog of outstanding follow-ups

A message from Aintree:

The team at the Aintree site of Liverpool University Hospital NHS Foundation Trust would like to say thank you for being nominated for the BADBIR team of the month. It has been a combined effort by the team to get all the outstanding visits and data collection up to date after the recent pressures due to the Covid 19 pandemic.

The research nurses/practitioners Kate Fenlon, Michelle Linforth and James Pratt have worked hard to complete all the outstanding visits and queries with the much-needed help of Kerry Williams, our Clinical Research Associate, who is always happy to help and often at short notice. Maureen Flinn, Dermatology specialist nurse, who has worked on the study for 12 years, has been a great help to the research nurses with her knowledge and willingness to help when there are any queries.

Dr Arun Bharati, Principal Investigator

August 2022

Royal Free London NHS Foundation Trust was selected as they are working hard to tackle their overdue follow-ups

Research Nurse Ruth Staunton, Research Nurse Richard Horne, Consultant Dermatologist Sandy McBride

A message from Royal Free:

The success of BADBIR at our site is down to teamwork. Our Dermatology Consultant Sandy McBride along with the other Consultants are very involved with BADBIR and ensure that all the information I need is documented in the hospital notes. Our Health Care Assistant in Clinic Margret Cummings is incredibly helpful when it comes to gathering the observations and ensuring correct questionnaires are given out to the BADBIR patients.

Richard Horne, Research Nurse

July 2022

Liverpool University Hospitals NHS Foundation Trust (Broadgreen Hospital Liverpool) was selected for their huge effort to clear their outstanding follow-up backlog, built up during the COVID-19 pandemic.

A message from Broadgreen:

We were happy to hear that all the work we had done trying to get the BADBIR database up to date at Broadgreen Hospital, Liverpool had been recognised, and it's great to be awarded team of the month! We are a very small team, Dr Parslew is PI and Jean Roberts and Sarah Aldwinckle are the Research Nurses.

The database had hundreds of patient follow-ups outstanding after not working on BADBIR during COVID redeployment, as well as many queries and ESIs. After many weeks of working through the database, one patient follow-up at a time, we have managed to get back on track. We completed patient follow-ups in clinic, but we have also called patients at home.

Hopefully over the next few months we can focus on improving our recruitment rate.

Sarah Aldwinckle, Dermatology Research Nurse

June 2022

Wye Valley was selected for their excellent follow-up completion.

A message from Wye Valley:

Two years ago we struggled to keep the BADBIR database up to date. A system was devised whereby all the information that the Clinical Trials Team need is contained within the patient's clinic letter. Patients are tracked by the Clinical Trials Team on the BADBIR website so that they are aware of when patients' appointments should be. There is close liaison with our Lead Inflammatory Specialist nurse who sees many of the BADBIR follow up patients and also provides a link with the Clinical Team.

The Clinical Team have worked hard to keep on top of BADBIR and Inflammatory patient follow ups during the pandemic. There are regular meetings between members of the Clinical and Clinical Trials Team to ensure that the BADBIR runs smoothly.

We are very proud and grateful to be named BADBIR centre of the month!

Vicky Diba, Consultant Dermatologist