Baseline and follow-up

Name

Version

Details

Patient Information Sheet

5.3

Must be printed on Trust-headed paper

Patient Consent Form

5.3

Must be printed on Trust-headed paper

Participant Information Sheet

2.2

For very young children, guide: under 6

Participant Information Sheet

2.2

For young children, guide: 6-10

Participant Information Sheet

2.2

For children, guide: 11-16

Patient Assent Form

5.3

For the participant to sign

Participant Consent Form for Parent/Guardian

5.3

For the parent or guardian to sign

Baseline Registration Checklist

11

This is a registration checklist, clinical questionnaire, patient questionnaire and QOLs in one document (now updated to version 10).

Clinical Baseline Questionnaire

11

Now updated with the latest study drugs.

Patient Baseline Questionnaire

6

Corresponds to the Lifestyle Factors page on the database.

Paediatric Patient Baseline Questionnaire

2

Please ask patient to complete all relevant questions

Patient QOL Questionnaires

This contains the CAGE, DLQI, EQ-5D (EuroQOL), HAQ and HADS in one document.

CDLQI

Children’s Dermatology Life Quality Index

CDLQI cartoon version

Children’s Dermatology Life Quality Index for younger children

EQ-5D-Y

Children’s EQ-5D (EuroQol)

CHAQ

Childhood Health Assessment Questionnaire (applicable if the patient has a diagnosis of Inflammatory Arthritis)

Follow-up Checklist

11

This is a follow-up checklist, clinical questionnaire and QOLs in one document. Now updated to version 11.

Clinical Follow-up Questionnaire

11

Updated to version 11.

Patient Follow-up Questionnaire

7

Medical Problems, DLQI, EQ-5D (EuroQol), CAGE