How we use your data

This information applies only to clinicians and authorised members of BADBIR study site teams who register for and log in to the BADBIR clinician database. It does not apply to BADBIR participants.

If you are looking for information about how BADBIR uses patient data, please visit Your Data.

Learn how your personal data is collected, stored, and used for the purposes of the BADBIR study.

By joining a BADBIR study site team and/or registering for a BADBIR clinician database account, you permit us to collect and store the following information:
your title, name, email address, job role, employer, and a copy of your CV.
This information is required to meet data security and research governance standards.

What we use your information for

1. Verification and monitoring of database access requests

We use your information to verify your identity, approve database access requests, and maintain secure audit trails. This ensures we comply with data security requirements.

2. To fulfil research governance requirements

Participation in research requires adherence to Good Clinical Practice for managing study documentation.
BADBIR maintains an electronic Study Site File, which includes:

• a delegation log (your name, job role, and dates worked on the study)
• a copy of your CV confirming your qualifications

For Principal Investigators only, your name and centre name will be displayed publicly on our
participating centres page.

3. To communicate important study updates

The email address you provide is used to send essential study communications. This may include study updates, clarification requests about entered data, or routine reports such as the six‑monthly finance statement.

How do we protect your information?

Access to the BADBIR clinician database is strictly controlled.
Your information is stored on secure servers at The University of Manchester, which operate under institutional data protection and security standards.

Do we disclose any information to outside parties?

Only members of the BADBIR team at The University of Manchester and members of the BADBIR site research team can access this information through the online Site File section of the BADBIR database.
We do not share this information outside the BADBIR study team.

Some details will appear on your centre’s electronic Delegation Log (your title, name, and job role).
Your CV will also be stored in the BADBIR Study Site File.

Other research opportunities

If you choose to opt in, we may contact you about other dermatology research opportunities approved by the BADBIR Steering Committee.
You will only receive these communications while you remain an active member of a BADBIR study site team.

You may withdraw this consent at any time by emailing
badbir@manchester.ac.uk